We interurpt this post for a pee break.
Actually, it’s mostly just my sleep it disrupts. As a young twenty-something I have to use the bathroom tops four times a day. Healthy? Don’t know, don’t care. But when I am on an IV I use the bathroom upwards of ten times.
DANG IT, HOW CAN ANYONE DO THIS JOB AND STILL HAVE A JOB?
Seriously! I am on five IV rounds a day right now of 100ml each. Two of them run into my veins in thirty minutes, and then three are slowly dripped over the course of an hour. It would be nice if the IVs were the only added thing to my day, but they’re not. There’s six more pee breaks I have to take, there’s the added liter of water I have to drink due to dehydration, but my bladder is so full? Of salt. And then there is the side effects of five rounds of antibiotics in a day.
America should give more sick leave. But I didn’t take any. At all because, I can’t afford it. I have student loans, had to buy a car, have many car related payments… There’s more I am forgetting. Thankfully I don’t have children or I would probably leave them at the play ground. (This would be awful! But I wouldn’t blame a momma for losing her wits every once in a while! Y’all are moms (and dads) you have to remember for so many people!).
I didn’t take sick leave, because I would rather be normal, I don’t want special treatment, but I can’t lift more than 10lbs right now so if everyone could please open all the doors that are heavy, I would be incredibly thankful!
There are so many nuisances, disruptions, living semi-independently is hard. (I live with a friend of my family, but we don’t interact much…) I can still drive with my left arm, I can still get my own 3am IV and not snooze the alarm, I can still do my laundry, and feed myself.
Can we talk about those people who can’t for a second? I am incredibly thankful I can, and am abled(noun), so that I can take care of myself. But those who have to humble themselves and let others dote on them hand and foot, that takes some real strength in this day when independence is praised so loudly and the family is cast aside for individuality.
You are amazing.
And every care giver who anticipates the needs of the dependent, and who works relentlessly to make sure needs are met, you are amazing.
People like you are such a beautiful disruption to society that remind us we all need to be humble. Thank you for your love.
In conclusion, we need more disruptions in our day to remind us to not just think about our own lives. There are so many lives! And every one is incredibly important.
Did anyone see the picture of the doctor who broke down after losing his 19 year old patient? It brought me to tears. I thought of my doctors, and thier reaction to my death one day (I cried).
I realize now that’s a side effect of Cystic Fibrosis, and I pray I will outlive them. I’ve always been so narrow with my life, I have made all the plans, I have written a will, it’s always been when I die young, and never if.
All those care givers, your heart beat is the strongest we will know.
All of the Dependents